S. 1838, the DeOndra Dixon INCLUDE Project Act of 2026, passed the Senate on August 6, 2026.
S. 1838 — DeOndra Dixon INCLUDE Project Act of 2026
What it does
This bill establishes the INCLUDE Project, a federally funded research program at the National Institutes of Health (NIH) focused on Down syndrome. It directs the NIH Director to conduct and coordinate research on Down syndrome across the lifespan, including studies of co-occurring conditions (like Alzheimer's disease and autoimmunity), clinical trials inclusive of people with Down syndrome, and interventions to improve quality of life. The bill requires biennial reports to Congress on research activities and outcomes.
Quorum's transparency scan found no buried provisions in DeOndra Dixon INCLUDE Project Act of 2026.
What happens next
S. 1838 passed the Senate. It now moves to the other chamber.
Who is behind it
Filed by John Hickenlooper. Cosponsored by Alex Padilla, Chris Van Hollen, Christopher Coons and Cory Booker.