Senate designates rare neurological disease awareness day
S.Res. 447 — A resolution designating September 25, 2025, as "National Ataxia Awareness Day", and raising awareness of ataxia, ataxia research, and the search for a cure. · Filed by Cindy Hyde-Smith (R-MS) · 2 cosponsors · Introduced Oct 9, 2025 · Passed chamber
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What it does
This resolution designates September 25, 2025, as 'National Ataxia Awareness Day' to raise public and professional awareness of ataxia, a rare neurological disease affecting coordination and movement. The Senate recognizes the need for better diagnosis, care access, and research funding for ataxia patients and their families, and encourages states and localities to support these goals.
Why we flagged it
This is a standard Senate resolution designating a national awareness day for a rare disease. It contains no legislative mechanism, appropriations, or regulatory change—only symbolic recognition and encouragement of awareness and research support.
Who it affects
This is a symbolic resolution that raises awareness of a rare, serious neurological disease affecting fewer than 200,000 Americans. It costs nothing, imposes no burdens, and may increase public understanding and research attention for patients with limited treatment options.
Named in the bill
National Ataxia Awareness Day, ataxia telangiectasia, Friedreich's ataxia, spinocerebellar ataxia, Orphan Drug Act, U.S. Senate
Where it stands
2 cosponsors: 1 Democrats, 1 Republicans.
- Oct 9, 2025 — Introduced · Congress.gov: “Introduced in Senate”
- Oct 9, 2025 — Passed the Senate · Congress.gov: “Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a…”
Dates and quoted wording are Congress.gov's action record; the timeline shows status changes, not every procedural step.
How this was measured
Analysis — Quorum's AI read the full bill text on Jul 6, 2026; transparency and hidden-provision scores are compared against the median of 16,222 analysed bills.
Status and sponsors — Congress.gov's bill record — actions, committee referrals and cosponsors — loaded nightly. The timeline shows status changes, not every procedural action.
As of — page rendered 2026-10-20.
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