Congress demands answers on mysterious ALS surge in veterans
H.R. 6001 — Veterans with ALS Reporting Act · Filed by Jason Crow (D-CO) · 9 cosponsors · Introduced Nov 10, 2025 · Markup held
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What it does
This bill requires the Secretary of Veterans Affairs to submit a report within one year on the incidence and prevalence of ALS in veterans, including an assessment of current VA and CDC resources, identification of gaps, and strategies to reduce ALS risk and expand clinical trial access for affected veterans. The VA must then track ALS prevalence using the CDC registry and submit updates every three years thereafter.
Why we flagged it
The bill's sole operative mechanism is a requirement for federal agencies to report on ALS prevalence in veterans and develop risk-reduction strategies. It is a transparency and accountability measure, not a spending bill, regulatory change, or private benefit.
What the text implies
- Establishing a formal tracking mechanism via CDC registry may create the first comprehensive epidemiological baseline for ALS in the veteran population, potentially revealing previously undocumented clusters or environmental/occupational risk factors specific to military service.
- The mandate to develop clinical-trial pathways could accelerate veteran enrollment in ALS research, improving data quality for drug trials and potentially accelerating FDA approval timelines for ALS therapeutics.
- Requiring the VA to identify resource deficiencies creates a documented record that may support future appropriations requests or legislative action to expand ALS care capacity within VA clinics.
Section numbers refer to the bill text the analysis read — linked under Primary records below.
Who it affects
The bill mandates transparency and data collection on a serious disease affecting veterans, identifies resource gaps, and directs development of risk-reduction and clinical-trial strategies—all at no apparent cost to veterans or the public. It creates accountability for federal agencies to address a documented health crisis in the veteran population.
Named in the bill
Department of Veterans Affairs, Centers for Disease Control and Prevention, U.S. Congress, Veterans (as defined in 38 USC § 101)
Where it stands
9 cosponsors: 6 Democrats, 3 Republicans.
- Nov 10, 2025 — Introduced · Congress.gov: “Introduced in House”
- Nov 10, 2025 — Referred to House Committee on Veterans' Affairs · Congress.gov: “Referred to the House Committee on Veterans' Affairs”
- Jan 13, 2026 — Hearing held · Congress.gov: “Subcommittee Hearings Held”
- Apr 16, 2026 — Markup held in committee · Congress.gov: “Subcommittee Consideration and Mark-up Session Held”
Dates and quoted wording are Congress.gov's action record; the timeline shows status changes, not every procedural step.
Money around this bill
3 lobbying clients named this bill on 4 disclosure filings across 2 quarters, Dec 2025 to Jun 2026. Those filings disclosed $140,000 in lobbying spend. A filing names 20 bills on average, so that figure is what each filing reported, not a share belonging to this bill.
More lobbying clients named this bill than 61% of bills with at least one filing.
Jason Crow, the sponsor, reported $227,840 in PAC receipts in the 2026 cycle.
- I Am Als — $60,000 on 2 filings
- Votevets Action Fund, Inc. — $50,000 on 1 filing
- The Als Association — $30,000 on 1 filing
Lobbying Disclosure Act filings through Jul 20, 2026. A filing shows who paid to lobby on a bill it names, not what changed.
How this was measured
Analysis — Quorum's AI read the bill text published by Congress.gov (2,132 characters) on Aug 20, 2026. Section numbers in the findings refer to that text, linked below; transparency and hidden-provision scores are compared against the median of 16,222 analysed bills.
Status and sponsors — Congress.gov's bill record — actions, committee referrals and cosponsors — loaded nightly. The timeline shows status changes, not every procedural action.
Money — Senate Lobbying Disclosure Act filings whose specific-issue field names this bill for quarters ending Dec 2025 to Jun 2026. A filing's amount is reported whole beside the median number of bills a filing names; it is never divided across them. PAC receipts are FEC-reported contributions to the sponsor's candidate committee in the 2026 cycle.
As of — lobbying records through Jul 20, 2026 · page rendered 2026-10-20.
“Congress demands answers on mysterious ALS surge in veterans” QuorumCivic. https://share.quorumcivic.app/bill/119/hr6001 Report an error
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